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Patient Information and Support Groups

Support Groups

The following is an alphabetical list of patient support groups for those suffering from skin disease. They are often run by volunteers who suffer from the disease themselves, and many patients find it enormously valuable to have such contact with others both for support and for practical help. They also often support research efforts. If no support group exists for the disease in which you are involved, perhaps it may be worth considering starting up such a group.

Acne Support Group
Allergy UK
Behcet's Syndrome Society
British Association of Cancer United Patients (Cancer BACUP)
British Association of Skin Camouflage
British Red Cross
Caring Matters Now (CMN) The Congenital Melanocytic Naevus Support Group
Changing Faces
Dariers Disease Support Group
Ectodermal Dysplasia Society
Ehlers-Danlos Support Group
Hairline International
Herpes Viruses Association
Ichthyosis Support Group
Latex Allergy Support Group
LEPRA - The British Leprosy Relief Association
Let's Face It
LUPUS UK
Lymphoma Association (LA)
Marfan Association UK
Myositis Support Group
National Eczema Society
National Lichen Sclerosus Support Group
Neurofibromatosis Association
Pemphigus Vulgaris Network
Primary Immunodeficiency Association (PIA)
Pseudoxanthoma Elasticum (PXE) Support Group
Psoriasis Association
Psoriatic Arthropathy Alliance
Raynaud's & Scleroderma Association Trust
Scleroderma Society
Shingles Support Group
Skin Care Campaign
Telangiectasia Self Help Group
Terrence Higgins Trust
Tuberous Sclerosis Association
Vitiligo Society
Wessex Cancer Trust Marc's Line (Melanoma and Related Cancers of the Skin)

Links

British Association of Dermatologists
New Zealand Dermnet
Pubmed
Medline Plus

 

Last updated: Jan 08 2009
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